In Coimbatore, parents of a child suffering from Spinal Muscular Atrophy have appealed for government help at the district collector’s office, estimating the treatment costs at 16 crore rupees.
Coimbatore: Sureshkumar and Nithyadevi, parents from Coimbatore's Sidco area, have filed an appeal at the district collector’s office seeking financial assistance for their 2.5-year-old daughter who suffers from Spinal Muscular Atrophy, a rare genetic disorder. From an early age, their daughter exhibited signs of lethargy and mobility issues, prompting medical consultations that led to the diagnosis.
After several diagnostic tests returned ineffective treatments, the genetic tests confirmed the presence of Spinal Muscular Atrophy. The parents learned that effective treatment is available at the Baptist Hospital in Bengaluru and subsequently consulted with experts there. They were informed that there is no medication available in India for this condition, and the necessary treatment has to be imported from Switzerland, costing approximately ₹16 crores.
The distraught parents have now requested Tamil Nadu government's intervention to fund the exorbitant treatment costs to save their child’s life, urging the district collector to recommend and facilitate the process.
After several diagnostic tests returned ineffective treatments, the genetic tests confirmed the presence of Spinal Muscular Atrophy. The parents learned that effective treatment is available at the Baptist Hospital in Bengaluru and subsequently consulted with experts there. They were informed that there is no medication available in India for this condition, and the necessary treatment has to be imported from Switzerland, costing approximately ₹16 crores.
The distraught parents have now requested Tamil Nadu government's intervention to fund the exorbitant treatment costs to save their child’s life, urging the district collector to recommend and facilitate the process.