Kuniyamuthur police seize 1130 bottles of liquor hoarded in a factory near Sundakkamuthur in Coimbatore
Parents of the nearly 2-year old K S Mithrra will not give up until they raise the remaining sum of rupees 7.5-crores to treat their nearly 2-year old daughter. Born on 6 July, 2019, she will turn two in a few days.
The girl who is born to K. Satheesh Kumar (27) who is involved in doing textile business and V. Priyadarshini (26), a home-maker who reside in Komarapalayam taluk of Namakkal District, is diagnosed with Type 2 (intermediate) Spinal Muscular Atrophy (SMA). The baby girl was diagnosed of this condition less than a month ago.
The couple are working towards collecting funds to the tune of 16-crores to procure the Zolgensma which is a gene therapy drug that is used to treat the condition. The drug when administered before the child is two-years old works well. However, according to the girl’s mother, a three-year old boy in Delhi was administered the drug and is doing well.
Of the 16-crores cost that is involved procuring the drug which is manufactured and sold by Novartis, a U.S. based company, the parents have as of this writing managed to collect just half the funds. An additional of 6-crore is the cost to import the life saving drug, her mother said. “We have requested the government of India to wave off the import charges and right now we are racing against time to collect the remaining amount of 7.5-crores to procure the drug for our child. Only once the payment is made, the company will dispatch the drug.” a teary eyed Priyadarshini told SimpliCity on Monday.
Help continues to pour in from various quarters. However, the determined parents will not give up until the total amount of 16-crores is collected.
The ordeal started in December 2020, when Mithrra was just 15-months old. Her parents noticed their girl struggling to walk as she kept falling while attempting to do so. The couple also took note of the fact that the girl’s body shock when she walked a few steps. It was back then that the young couple consulted a paediatric orthopaedic at a private hospital in Coimbatore. An x-ray ruled out any bone deformity. However, many months on the baby girl continued to struggle while walking.
This prompted the parents of the child to visit a neurosurgeon at another private Coimbatore-based hospital. “As advised by the neurosurgeon, we did a genetic test in May 2021 and it results of the test that came out in the first week this month brought to light that our nearly two-year old girl is suffering from Type 2 SMA.” Priyadarshini said. The parents have taken a second opinion about the diagnosis and treatment for the disorder from another private hospital in Coimbatore.
Currently, the priority of the parents is to collect the total sum of 16-crores to procure the life saving drug. In a bid to do so, fundraising campaigns are running on multiple platforms. Those who are interested in supporting the girl’s treatment can do a Google pay transfer to mobile number 95006-23402. This is Mithrra’s father’s personal number.
The girl who is born to K. Satheesh Kumar (27) who is involved in doing textile business and V. Priyadarshini (26), a home-maker who reside in Komarapalayam taluk of Namakkal District, is diagnosed with Type 2 (intermediate) Spinal Muscular Atrophy (SMA). The baby girl was diagnosed of this condition less than a month ago.
The couple are working towards collecting funds to the tune of 16-crores to procure the Zolgensma which is a gene therapy drug that is used to treat the condition. The drug when administered before the child is two-years old works well. However, according to the girl’s mother, a three-year old boy in Delhi was administered the drug and is doing well.
Of the 16-crores cost that is involved procuring the drug which is manufactured and sold by Novartis, a U.S. based company, the parents have as of this writing managed to collect just half the funds. An additional of 6-crore is the cost to import the life saving drug, her mother said. “We have requested the government of India to wave off the import charges and right now we are racing against time to collect the remaining amount of 7.5-crores to procure the drug for our child. Only once the payment is made, the company will dispatch the drug.” a teary eyed Priyadarshini told SimpliCity on Monday.
Help continues to pour in from various quarters. However, the determined parents will not give up until the total amount of 16-crores is collected.
The ordeal started in December 2020, when Mithrra was just 15-months old. Her parents noticed their girl struggling to walk as she kept falling while attempting to do so. The couple also took note of the fact that the girl’s body shock when she walked a few steps. It was back then that the young couple consulted a paediatric orthopaedic at a private hospital in Coimbatore. An x-ray ruled out any bone deformity. However, many months on the baby girl continued to struggle while walking.
This prompted the parents of the child to visit a neurosurgeon at another private Coimbatore-based hospital. “As advised by the neurosurgeon, we did a genetic test in May 2021 and it results of the test that came out in the first week this month brought to light that our nearly two-year old girl is suffering from Type 2 SMA.” Priyadarshini said. The parents have taken a second opinion about the diagnosis and treatment for the disorder from another private hospital in Coimbatore.
Currently, the priority of the parents is to collect the total sum of 16-crores to procure the life saving drug. In a bid to do so, fundraising campaigns are running on multiple platforms. Those who are interested in supporting the girl’s treatment can do a Google pay transfer to mobile number 95006-23402. This is Mithrra’s father’s personal number.