One year old Zainab from Podanur, Coimbatore gets ₹16-crore injection to save her life in a lucky draw
Coimbatore: A one-year-old girl from Coimbatore was given a free injection costing Rs 16 crore in a lucky draw for curing a form of a spinal cord injury after suffering from a rare spinal cord birth defect. The baby was given the medicine at a hospital in Delhi today.
Abdullah and Ayesha hail from the Podanur Amman Nagar area of Coimbatore. Their one-year-old daughter is Zuha Zainab. This child is suffering from a rare type of ‘spinal muscular dystrophy’ caused by a genetic defect. ‘Spinal muscular dystrophy’ is caused by a congenital defect in the spinal nerves. Nerves are needed to move the muscles in the body. Nerves do not develop naturally in children with this disease. They are likely to survive for a maximum of two years. Even so,buying one injection to solve this defect is still beyond the reach of the average person. Therefore, in order to save the baby, the gene that is not in the baby's body is injected.
In August 2020, two months after the birth of Juha Zainab's baby, she was unable to lift her legs and arms above her knees.The baby has been suffering from shortness of breath while breastfeeding.Thus, while going to a private hospital for treatment, the doctors who examined the child's genes said that the child had a spinal ligament disease that could be caused by a genetic infection and that the child would be alive for only one year.
They also said that injecting a gene that is not in the baby's body could save the baby and that the injection should be brought to India from the United States.A huge social media campaign was launched to crowdsource the funds required for the child.But only Rs 10 lakh has been received in a fundraising effort through social media.
They then registered with the fab test free drug company in Bangalore.They have also sought help from the central government for the drug.After receiving pediatric treatment at a private hospital in Delhi for the past two months, she received a lucky draw of Rs 16 crore free of cost through a US pharmaceutical company.It was followed this afternoon by the injection of baby Juha Zainab.At the same time, the parents said that the drug was funded by the central government.
Abdullah and Ayesha hail from the Podanur Amman Nagar area of Coimbatore. Their one-year-old daughter is Zuha Zainab. This child is suffering from a rare type of ‘spinal muscular dystrophy’ caused by a genetic defect. ‘Spinal muscular dystrophy’ is caused by a congenital defect in the spinal nerves. Nerves are needed to move the muscles in the body. Nerves do not develop naturally in children with this disease. They are likely to survive for a maximum of two years. Even so,buying one injection to solve this defect is still beyond the reach of the average person. Therefore, in order to save the baby, the gene that is not in the baby's body is injected.
In August 2020, two months after the birth of Juha Zainab's baby, she was unable to lift her legs and arms above her knees.The baby has been suffering from shortness of breath while breastfeeding.Thus, while going to a private hospital for treatment, the doctors who examined the child's genes said that the child had a spinal ligament disease that could be caused by a genetic infection and that the child would be alive for only one year.
They also said that injecting a gene that is not in the baby's body could save the baby and that the injection should be brought to India from the United States.A huge social media campaign was launched to crowdsource the funds required for the child.But only Rs 10 lakh has been received in a fundraising effort through social media.
They then registered with the fab test free drug company in Bangalore.They have also sought help from the central government for the drug.After receiving pediatric treatment at a private hospital in Delhi for the past two months, she received a lucky draw of Rs 16 crore free of cost through a US pharmaceutical company.It was followed this afternoon by the injection of baby Juha Zainab.At the same time, the parents said that the drug was funded by the central government.